You cant find this feeling or this moment when you are in the thick of complex health care issues. I couldnt have found and felt this feeling whilst we were fighting to keep our son alive. You just are on complete critical care mode, so finding the clarity of the place your loved one existsContinue reading “When you realise you have a special hybrid child, and you are luckier than the rest of the ordinary world”
Tag Archives: parentingdisability
When you aren’t ok, but you have no choice, where does it end
**EDIT to note: This post below was written and in draft since July. I never posted it. I dont know why. Probably because posting it was the exact same cycle of “help/acknowledgment/silence/you need to feel differently feedback, that this post was essentially about. But this is how it feels, some days thick and so deep,Continue reading “When you aren’t ok, but you have no choice, where does it end”
survival of one day at a time
when no one else around you or outside of your four walls, knows or has any idea, that each single day is facing a constant survival of one minute to the next. egg shells, recovery, meltdowns, breakages, spills, injury, tears, laughter, breathing, anxiety, fatigue, brief moments of still, then chaos and then eggshells and theContinue reading “survival of one day at a time”
A Journey to Joy 