Losing my confidence socially

You’d think as I grew more confident with raising an autistic son, I’d find more strength and feel more comfortable being able to talk about life and being around friends socially. I thought it would be that way. I’ve started to feel like I’ve got nothing valid to say or offer the world in anyContinue reading “Losing my confidence socially”

When you aren’t ok, but you have no choice, where does it end

**EDIT to note: This post below was written and in draft since July. I never posted it. I dont know why. Probably because posting it was the exact same cycle of “help/acknowledgment/silence/you need to feel differently feedback, that this post was essentially about. But this is how it feels, some days thick and so deep,Continue reading “When you aren’t ok, but you have no choice, where does it end”

Protecting my son or over sensitive ?

Today I had probably my first major parental concern moments for my disabled son. I have had moments that are minor and more medical, this one was a red flag moment about his safety in someone else’s care. I’m still really upset about it. I think I’ve talked and cried and replayed it over inContinue reading “Protecting my son or over sensitive ?”

Grief on top of grief

In addition to the daily surges of grief about our son’s life both now & the future watching him struggle to eat, breathe, sleep, communicate and play, the future for him and the huge impact on our own health & wellbeing, on top of that, I had one of those days which comes about onceContinue reading “Grief on top of grief”