Today I had probably my first major parental concern moments for my disabled son. I have had moments that are minor and more medical, this one was a red flag moment about his safety in someone else’s care.
I’m still really upset about it. I think I’ve talked and cried and replayed it over in my head 50 times today since it happened.
When your baby can’t protect himself or say no for himself with adults truly respecting his “no” because he’s intellectually delayed, then how do I trust will be ok? When someone shows no empathy or kindness to a inconsolable severely autistic child… then should they be permitted to be his safety guard? He needs to be shown protection from those around him.
Why can’t people understand not every disabled child will learn at the same pace? Some need more support to put on a shoe and some will maybe never do it. Doesn’t mean they don’t want to. Or that they are defiant. Maybe they don’t even know why or how.
How can I trust someone to care and be kind to my son when I’m not there to help or comfort him, if they are cold to him standing straight in front a parent? What’s it like when I’m not there?!
I want to protect him from people not hearing him or seeing his needs. His needs are equal to yours, you are just privileged enough to have a fully functioning voice and brain. He deserves the same respect with his voice and his use of “no” and tears of fear.
Respect his ability and his barriers. Don’t punish him by calling him defiant . He’s a 5 year old child.
I’m so confused and feel so hurt by the system.
A Journey to Joy 