Today I had probably my first major parental concern moments for my disabled son. I have had moments that are minor and more medical, this one was a red flag moment about his safety in someone else’s care. I’m still really upset about it. I think I’ve talked and cried and replayed it over inContinue reading “Protecting my son or over sensitive ?”
Tag Archives: tracheomalacia
Sunday. That was a very very long day
Sometimes we have a day which is lovely and we can cope we have good moments. Then we have days which are a daylight to bedtime fight and all anxiety with no calm or oxygen in between. Sunday was this kind of day. It was 4 trips to the park, pool and outside places, nothingContinue reading “Sunday. That was a very very long day”
Grief on top of grief
In addition to the daily surges of grief about our son’s life both now & the future watching him struggle to eat, breathe, sleep, communicate and play, the future for him and the huge impact on our own health & wellbeing, on top of that, I had one of those days which comes about onceContinue reading “Grief on top of grief”
A Journey to Joy 