You’d think as I grew more confident with raising an autistic son, I’d find more strength and feel more comfortable being able to talk about life and being around friends socially. I thought it would be that way. I’ve started to feel like I’ve got nothing valid to say or offer the world in anyContinue reading “Losing my confidence socially”
Tag Archives: disability
When you realise you have a special hybrid child, and you are luckier than the rest of the ordinary world
You cant find this feeling or this moment when you are in the thick of complex health care issues. I couldnt have found and felt this feeling whilst we were fighting to keep our son alive. You just are on complete critical care mode, so finding the clarity of the place your loved one existsContinue reading “When you realise you have a special hybrid child, and you are luckier than the rest of the ordinary world”
When you aren’t ok, but you have no choice, where does it end
**EDIT to note: This post below was written and in draft since July. I never posted it. I dont know why. Probably because posting it was the exact same cycle of “help/acknowledgment/silence/you need to feel differently feedback, that this post was essentially about. But this is how it feels, some days thick and so deep,Continue reading “When you aren’t ok, but you have no choice, where does it end”
Protecting my son or over sensitive ?
Today I had probably my first major parental concern moments for my disabled son. I have had moments that are minor and more medical, this one was a red flag moment about his safety in someone else’s care. I’m still really upset about it. I think I’ve talked and cried and replayed it over inContinue reading “Protecting my son or over sensitive ?”
When your ASD level 3 doen’t fit the model of the “ASD” world
We drove 2 hours each way in the car on our sunday to find a special new place, designed for kids like our son (ASD LEVEL 3) to play with other kids with Autism or special needs. He was screaming, kicking, moaning, crying, throwing his bottle, the mobile phone, hitting etc for most of theContinue reading “When your ASD level 3 doen’t fit the model of the “ASD” world”
First steps
Today we got to share watching our baby girl , 16 months old on 23 Feb 2021 take about 6 or 7 unassisted first walking steps today. It was a special moment at home on a Sunday, we’ve all been watching and waiting for. She has been cruising furniture and taking steps between coffee tableContinue reading “First steps”
TWO sounds – “An-Chor”
This week we are finally hearing a few more unprompted and impromptu two sound words/communication moments… this has been a goal and we’ve been working on this for atleast two years, we’ve been working on more eat forever!! You can hear more and eat separately, but never said together. Single word, two sounds…”Anchor” is beingContinue reading “TWO sounds – “An-Chor””
Lodging complaints & who has the energy anymore?
So it appears everyone I have spoken to says our experience with the LAC (Local Area Coordinator) for the NDIS was wrong or should not have asked for the things or said the things she had, to me. Im told I should call the NDIA Quality and Safeguard Commission to lodge a complaint. That thisContinue reading “Lodging complaints & who has the energy anymore?”
A Journey to Joy 